Reply To: Anti-MAG treatment update

February 12, 2018 at 5:11 pm

Hi Christophe,

I have also read that allergies are a side effect of IVIG, as well as headaches. I always get a mild headache that starts 2 days after the IVIG infusion and it lasts for 3 days, even after taking Ibuprofen. But you are wise not to get the IVIG anymore due to the allergic reaction. My allergist says that each allergic reaction can be worse than the one before. That is good that after 4 years of stopping your IVIG that your condition has only very slowly worsened. After two months of IVIG I am walking faster and balance is better. My neurologist prescribed a total of 6 months of IVIG so I will report my progress on this thread.

But I hope for all of us the anti-MAG clinical trials will be a success. I am thinking of going to Switzerland for the Phase 1 clinical trials if they will accept me.