Reply To: Anyone with Sensory Predominant CIDP?

February 9, 2018 at 1:47 pm

I wish you all the best. I think when I was having IVIg improvement started pretty quickly. With plasma exchange I feel improvement weeks three and four. My consultant says 40% of cases go into spontaneous remission but I have given up on that! What is a big help if you aren’t one of the 40% is knowing that you aren’t alone. I’d never heard of CIDP/CISP and no-one I spoke to had either so it took a while to get my head round it. What is also a comfort is that there is treatment out there although finding the right one and frequency can be a lengthy and frustrating process because everyone is different. There is even potential remission through immunosuppressants. That’s what I’m hoping for one day but if i’m not that lucky I just have to resign myself. Let us know how you get on.

Regards O