Reply To: CIDP – HSCT Clinical Trial, Dr. Burt Chicago
How are you doing after your HSCT? Since I came across this forum, I’ve been interested in pursuing. My CIDPO continues to get worse after IVIG, Prednisolone, sand Plasma Exchange. The bi-weekly IVIG keeps the neuropathy at bay, for the most part, but I continue to get worse over time. at 37, I feel I can fight this fight and live a more normal life and would be curious to see how everyone is doing who has tried it. I plan to reach out to the team at Northwestern to apply and learn more to ultimately see if its right for me. I’ve read the requirements and feel like I’d be a perfect candidate if all roads lead me to that decision.