Reply To: New working diagnosis of CIDP, starting pred

I thought I would put a close to this thread. The new neurologist I saw ran my NCS/EMGs again. They were normal. We found out the last neuro tech put in the wrong data for my height etc and since I’m far taller than average, it was falsely latent on the NCS. Did a skin biopsy for epithelial nerve fiber density, which was positive for severe small fiber neuropathy with some likely autonomic neuropathy too. Did more focused labs, and we discovered I have celiac disease, with almost no GI symptoms, hence the nearly 3 year delay in diagnosis and misdiagnosis. Started a gluten free diet and my symptoms are 90% better after 2 months. I thank God every day I got that third opinion. Getting my confirmatory small intestine biopsy soon, but given my sky high antibodies to gluten and vast improvement on the diet, my neuro already discharged me. So, don’t forget to remind your neuro to do a skin biopsy for small fiber neuropathy, and might as well check celiac panel as well if you are still undiagnosed with CIDP symptoms. CIDP is 1 in a million incidence, versus celiac being 1 in a 100, so it’s prudent to rule out. Oh, and those steroids I was on gave me gastritis according to my GI specialist…