Reply To: Anti-MAG treatment update

Hello all,

When i share the information about Polyneuron on this forum , we must be patient for the orphan drug, it’s very controlled : http://ec.europa.eu/health/documents/community-register/html/o1893.htm

Another information for you

My control EMG lasted a good hour at the Reference Center for Rare Neuropathies at the Kremlin Bicêtre Hospital.
Performed on the four limbs with this time the two techniques on some nerves on the surface and invasive (needles), I wonder about the quality and the reliability of this examination for the follow-up of the anti-Mag neuropathy. I see the neurologist at the end of February for the results.

This review gives me the opportunity to post two links about the QTRAC method that would be much more appropriate for tracking. I can not get an answer from the Adolphe de Rothschild Ophthalmological Foundation that tests this method.
Have you heard of it?

Links: https://clinicaltrials.gov/ct2/show/NCT02468596

https://www.kusajili.com/…/0e652b18-b9fd-4679-9547-0d605a26…

Matou from France