Reply To: Effects of GBS over 2 years later

December 30, 2017 at 11:39 pm

REPLY TO: nairbear62

You are the first person that I have known who has had it for almost as long as me! ๐Ÿ™‚

I am retired and I live in Berkeley, CA and am looking for those “long-term GBS patients” in the Bay Area.

No restless leg or calluses for me. We are all different! ๐Ÿ™‚

But the aging process is interesting. Hard to know what is aging versus something related to GBS – such a long time ago. But our bodies had to “adapt” to GBS – for me, foot drop has affected the rest of the body. Everyone knows when I am walking down the hall – as they hear my heavy footsteps. Also, my walking style has put lots of stress on feet and ankles (but knees are fine).

I do walk on my sides – my shoes show the different tread conditions. In fact, my podiatrist has told me to buy new shoes every year. Also, I wear hiking boots all of the time (started one month ago) – even in the house. And for hikes, I wear the ankle brace inside the boot.

I am experiencing more fatigue/heaviness in lower legs – I plan to see a neurologist in early January.