Reply To: Effects of GBS over 2 years later

December 21, 2017 at 10:05 am

I had GBS in 1974 as 12 years old. Nothing was known, my only treatment was 8 years of physical, occupational therapy. I could never run or step on tip toes again. I walked with limp and unassisted. All was good until last year, my knees are worn out, giving me terrible instability, I fall often if any uneven ground etc. I use cane every day, and stairs up or down are tough! I’m 55 years old and am off work indefinitely and have long-term insurance. Thank God I have already put in 36 years and raised 2 daughters. I’ve been to more than dozen doctors, specialist, surgeon’s. The risk is too high for knee replacement, so now I’m looking at bracing for ankles, legs. If anyone would have told me years later, all would go down hill, I would of called them a liar. I was so active, worked 8 + hours, come home ride my bike on road for 15 miles, cut grass, you name it I did it! It’s still a hard pill to swallow, but I am accepting that I will do things differently and go on. For years I was never wanted to be labeled”disabled” so I pushed on and of course being a young teen girl, I never wanted to be different. Today I am disabled and it’s very noticeable. I don’t care about that, but I just never thought of this happening. I ride my spin bike 4 days a week at least , I want to keep my quads strong and when weather is nice, I will buy recumbent bike. I refuse to give up yet! I know that alot is not known about long term GBS, but I seriously would love to hear from ANYONE having GBS in 1980’s that DID NOT have plasma exchange OR hemoglobin transfusion/Ivg treatment. I would like to know how others are doing, or if it affected their knees, hips etc. Thanks for this opportunity to reach others and feel not alone👌