Reply To: Anti-MAG treatment update
This is what I think I know. IVIG dilutes the concentration of the anti-Mag antibody but for some reason it is not effective for treating MAG. I have been to a total of 4 neurologists and I currently think I have one of the best. I was initially told by a doctor at Wash U Neuromuscular center to try Rituxan sooner than later if IVIG doesn’t work. He said that I would know whether it was working because my symptoms would decrease. My second Austin doctor kept telling me that IVIG was working and I knew it wasn’t but he did not listen to me. My first Austin doctor did not want to deal with a MAG patient.
The longer a MAG patient waits, the more of the myelin shealth is destroyed. The anti mag antibody creates “moth holes” in the myelin shealth. If there is axonal damage, it is very difficult to reverse. Theoretically, myelin shealth damage can be reversed if antibody production can be controlled.
HAS ANYONE TRIED A VIBRATION PLATE TO IMPROVE FUNCTION??