Reply To: Just trying to understand
CIDPTurtle. Started to read your blog and have it booked marked. Hope all the best for your daughter. Saw the picture of her getting the infusion at home, with her kitty at her side. I bet that was really comforting for her!
I had my infusion on Tuesday and for the first time in a long time, it hit me like a ton of bricks. Tired, sore, cranky, my feet went numb and my left hand went numb as well. Left work early on Wednesday and slept for 12 hours straight. Felt much better on Thursday.
As for the cause of my CIDP, I can’t prove it, but in July of 2016 I had a bunch of booster shots and my symptoms started that August. In my humble opinion, it definitely is the immune system reacting to immunizations.