Reply To: Tingling a year later – Neurologist says B12 deficiency

December 9, 2017 at 1:13 am

Hi jdspice,

Unfortunately, there’s no solid schedule that GBS follows; everyone recovers differently. I was told that upon reaching nadir, my body would rapidly begin to recover. Instead, I bottomed out and stayed there for almost a week until my neurologist put me on a high dose of prednisone. That seemed to initiate my recovery until things plateaued about a month later. Shortly thereafter, I was put on a longer, smaller regimen of prednisone, which again provided noticeable improvements.

Most literature I’ve read doesn’t really support the use of corticosteroids for gbs, but it may be worth a shot. At the very least, it can reduce any residual swelling (& pain) and potentially allow you to come off dilaudid. Best of luck!