Reply To: Lack of clinical markers? What could be going on?
@Jcheart Thank you for responding. It is so frustrating. I was able to see a neuromuscular specialist again. He did more labs for Myasthenia Gravis and another EMG, all normal. It got to the point where I could barely walk so I am now on leave from work. My strength has improved with rest, but the fatigue is unrelenting, and whenever I raise my activity level the weakness gets worse. Mayo just scheduled me for the end of January, so hopefully I will get some answers there (although if I’m lucky enough that insurance will cover it, I will have to crowdsource the travel expenses).
I’m so sorry about your experience. Best of luck with your EMG! I hope they figure out what’s going on with you.