Reply To: CIDP Progess and retrosepction (Long)

November 5, 2017 at 3:04 pm

I too had the initial infusions and the every three weeks for 3 years as well as infusions of prednisone. It is a long, tough experience. The mental struggle with all of it is equally as challenging. After 7 years I am ok. I have strength but no endurance. I am about 70% thru the acceptance stage. Happiness is creeping back into my life and will continue to do so as I learn to accept what has happened to me. I tell you this because I want you to know the sooner you can accept this crap that has been bestowed upon you, the sooner you will begin to enjoy your life in different ways possibly, than you were used to. Don’t give up and hopefully you have the love and support of family and people around you to lean on. Take care and ask anything you need to ask. I am here to share whatever may help you.