Reply To: Newly Diagnosed with CIDP

October 31, 2017 at 3:39 pm

Hi dsfritz

I wish you the best of luck.

I started treatments last December. After changing doctors in late April, I’ve been on IVIg infusions on a monthly basis since May

I’ve made steady progress, progressing from walking with a cane to being able to play golf again.

But, recovery isn’t even. You jump forward, then encounter setbacks.

I still have some minor numbness in my hands, and stress seems to make it worse.

Also, my feet hurt and after 8 hours of work they Hirt more.

While I’ve regained much of my strength, I still find myself fatigued at the end of the workday and at the end of the work week.

In general progress is incremental. You might not see it on a day to day basis, but compared to where I was in April, I’ve become a functional resin again.

As far as the IVIg goes, I take Benadryl and Tylenol before treatment and have no ill side effects except that I’m wiped out for a day.

Best of luck. Feel free to ask questions.