Reply To: Newly Diagnosed with CIDP

October 30, 2017 at 10:49 pm

Welcome to the group and best of luck with your journey. Everyone’s symptoms and progression are different, so try not to dwell too much on the bad outcomes. Some people improve or stabilize with treatment. And I’ve read that ~30% of people go into lifetime remission after 6 months of IVIG. In the meantime, do what you can to be as healthy as possible. Diet, exercise, sleep. And ask your neuro about PT for balance issues — there are exercises you can do to improve some aspects of balance. You can’t exercise away the sensory deficiencies, but you can strengthen stabilizing muscles and work on your vestibular system.