Reply To: Pre-dx limbo- WWYD?

I live in Portland, OR. I agree that I need to change neurologists, but I’m already at the best hospital in the city. My PCP confirmed that other neurologists she could refer me to would probably kick me back to OHSU (where I’m at now). On Thursday I reached out to an old friend at UCLA, who emailed my neurologist. She immediately started backpedaling and pretending she wasn’t blowing me off. I now have an appointment with someone on the neuromuscular team, which is very good. 🙂 I’m feeling more hopeful now.