Reply To: Starting Plasmapheresis on Monday. Have questions

October 23, 2017 at 3:57 pm

IVIG was my first treatment after my CIDP dx. 3 days of treatment. The evening after day 3, I started getting a headache that can only be described as feeling like someone was stabbing my temple with an ice pick. It was excruciating! Then the “flu-like” symptoms started; high fever, chills, body aches, and still the headaches. My blood levels also starting dropping, so had to have consults with hematology, and infectious disease (ruled out).

But with all that, within 1 month after treatments I was completely back to my old self. I could do EVERYTHING again, including run (I’m a half-marathon runner)!!

The doc never did any followup which was probably a mistake because exactly 1 year later, the symptoms returned.