Reply To: Should I seek second opinion on GBS/CIDP?

September 11, 2017 at 5:41 pm

It sounds like you need to see a neuro-ophthalmologist. The optic nerves are not considered “peripheral” so they are not a symptom of CIDP. Vision changes can be caused by autoimmune disorders that specifically target the optic nerves (such as NMO, there’s a blood test for that), medications that raise Intracranial Hypertension (like steroids), and from increased intracranial pressure (such as Idiopathic Intracranial Hypertension, which is diagnosed through opening pressure readings of lumbar punctures but there are a group of patient who can have all the symptoms but still be pressure test negative). NMO and optic neuritis need specific testing as the MRI is usually not able to detect. I’d keep hunting, but what you have may be a rare disease so you need to find specialists not generalists. Good luck.