Reply To: Rituximab (Rutixn)

September 11, 2017 at 7:29 am

Hi everyone,

Is there anybody out there such a rare case like me ๐Ÿ™‚ ? ( see short summary of my story below )
Have been on Enbrel since sept 2003.
It stopped the progress of CIDP and I gained some strength back
Now my doctor wants to add Rituximab ( Mabthera ) in order for me to gain more strength back
Anybody tried this mixture ?
Any comments appreciated

First symptoms late 1997 – balance
Tingling – cramps early 1998
Weakness in legs late 1998
Diagnosed feb 1999 –
Started IVIG treatment following diagnozes – very little improvement
80 mg prednizolone – march 1999 – great improvement
Tapered down the prednizolon and weakness and numbness came back
Plasmapheresis – little improvement
2002 – Found an article about Enbrel as possible treatment ( Dr Norman Latov in NY )
Visited Dr Norman Latov twice 2003
Started Enbrel 25 ml x 2 week
Started improvement and felt much better within 2 weeks

Today – only enbrel
Still facing weakness – haven’t been able to move my toes since 1999 but they still look great though ๐Ÿ™‚
Strength is weak and I can’t lift my heels from the ground
Have trouble keeping balance
Hands are almost normal – numbness in fingers