Reply To: Severe Cramping after IVIG

August 30, 2017 at 5:54 pm

I know what sparks the cramps. Like you said…daily living. And it’s only the cramps that get worse…and they do so after infusion. My strength remains good as does my endurance. Thus my conclusion.

But, I’ve tried going to every three weeks without IVIG and I declined rapidly, but that was three years ago and I’ve gone three weeks between infusions since then without any issues…just not on a regular basis.

I guess I’ll just keep waiting to see if someone has an actual similar experience, but I appreciate your input, jk.