Reply To: Severe Cramping after IVIG

Everybody’s reaction to medicine and to disease is different.

I had severe cramping, particularly in the calves, quads and hamstrings, but also in my hands, fingers and forearms whenever I did too much.

Too much what? Daily living, eating, using chopsticks (until I couldn’t hold them any longer) walking, climbing ladders, climbing stairs, shopping, vacuuming. Doesn’t matter. Pay attention to what and how much you do so you’ll know later when the cramps come which activity caused them.

Monitor yourself closely. Perhaps you feel better after infusion so you become even more active.

If you are getting worse, I question your conclusion that you might ask for IVIG less often.