Reply To: Denver CIDP Specialist

August 28, 2017 at 10:32 pm

Hmm, I wonder if there is a way for us to share our contact information without posting it on here? I’d rather take this conversation offline if we can, especially related to discussing providers. Are you on any of the Facebook CIDP or GBS pages? I do have some further thoughts about docs. My initials are BLH and I post/comment there frequently.

I wouldn’t worry too much about your first treatment being “right”. Early treatment is important, but it seems most docs follow a pretty standard protocol of first trying IVIG. 2g/kg over ~4 days, then 1g/kg every 4 weeks. For me, I’m about 140-145 pounds, so I received 140g of Privigen, 35g a day for 4 days. Then for the maintenance doses, I get 65g over one day. (slightly smaller dose since I lost some weight along the way).