Reply To: Anti-MAG treatment update

Hi 5523Cats and Matou,
The company that makes that orphan drug is called Polyneuron. I actually contacted the lead authors of the article that we have been talking about, http://www.pnas.org/content/114/18/E3689. They told me to monitor Polyneuron’s website for info on a clinical trial. They said most likely a trial will begin late 2018-2019 and would consist of folks in Switzerland (Matou you might be close enough to be considered in the early trial since you are in France). I just finished my second treatment (4 weekly infusions) of Rituxan. I didn’t see any improvement on my first treatment 6 months ago but thought I’d give it another chance as long as insurance would cover it again. I have found a few more anti-MAG folks from the USA and have sent them info on how to join this forum so we may have more people to share with. Take good care everyone!
Heidi