Reply To: CIDP Burning Out

August 24, 2017 at 10:51 am

My CIDP has gone into remission a few times, if that’s what you mean by “burn out.” The first few times this happened we d/c’d the IVIG completely. My symptoms returned after a few months. After restarting the IVIG my symptoms subsided (they never really completely go away).

The last time I went into remission, we moved my IVIG to 8 weeks instead of d/c’ing completely. After about six months, my symptoms worsened pretty quickly so we did a bolus and then went to every two weeks, working from there to every four. Things seem well controlled so we have moved to every 6 weeks.

I am diabetic and my neurologist worries about the impact on my kindeys when the IVIG is coupled with the diabetes. That’s why we are trying to minimize the dosages and treatments.