Reply To: Starting to Feel Poorly Again-your experience….

August 14, 2017 at 12:02 am

U turns? Feels more like a 360 degree spin out on ice in the middle of a snow storm. LOL

Saw improvements on day 3 of IVIG load dose which was around Feb last year. Infusions every 4 weeks until July/Aug (iirc) of that year and it wasn’t lasting as well by end of wk3/start of wk 4. Bumped dose and did OK until Jan/Feb and saw a major relapse in just 3-4 days at end of cycle. More prednisone (yuk) and switched to 2 week cycle. Did OK until June roughly and issues again so now it’s another upped dose of IVIG every 2 weeks.

Not as good as I was the first 6 months, better than I was 6 months ago, stable the last couple of months. Im not going to be running any races or playing a round of golf anytime soon.

Best of luck to you.