Reply To: Axonal Guillan Barre (AMAN)

August 13, 2017 at 8:35 pm

Hi all,
It’s been a while since I posted anything. I was diagnosed with axonal GBS in July of 2015. My recovery has been slow but steady. I found getting involved with as many activities as possible helped a lot. PT and OT at times seemed worthless and frustrating but, I was constantly reminded that GBS is getting better slowly. Now at 2 years and a couple of months since my diagnoses I’m jogging around the local high school track. My OT therapist and neurologist both say the hands are the last thing you get back and is apparently true for me. I continue to strengthen my hands combined with weekly massages following hot wax treatment. I have noticed some occasional muscle spasms but, only in the morning when stretching and only lasting seconds. I know every case is different but, if my experience is of any encouragement I will continue to update.

Keep moving