Reply To: Does the amount of protein in a CSF determine the amount of IVIg you get?
If, by “amount of IVIG…” you are referring to the initial loading dose and subsequent follow up doses the answer is no. The dosing for IVIG products is spelled out in the Manufacturer’s Prescribing Information Data Sheet and, in most cases, has been approved by the FDA.
The amount of IVIG given is generally given based on body weight. For example from an article by the National Institutes of Health (NIH) “The usual initiating dose of intravenous immunoglobulins (IVIg) in the treatment of chronic inflammatory demyelinating polyneuropathy (CIDP) is 2 g/kg/course.”
This means that if you weigh 50 kg, approx 100 lbs, you would be given 2 x 50 =100g as a loading dose.
Of course the dose, and the actual infusion rate, you receive is determined by your doctor.
You might benefit by reviewing some of the resources available on this site if you have not already. For example https://www.gbs-cidp.org/cidp/all-about-cidp/
Explore the various tabs on this website to learn about this condition.