Reply To: IVIG number two, should I get it

July 31, 2017 at 4:53 pm

I have read that it takes about three infusions to show improvement. I had one. The neuro wants to order more but there is a logistics problem. U am in a nursing home that won’t allow the infusion service in and I can’t walk, so the ambulatory infusion center won’t take me and hospitalization is too expensive. I am being tapered off Prednisone now with the hope that when I see my neuro next week, something else can be tried. The Prednisone I’d give me a little more strength, but the extra weight, swelling raised blood sugar really messed me up.

In two weeks, I go to the UC Irvine Neuromuscular Center for a diagnosis confirmation, which will hopefully force the insuarance company into paying for treatment.

Maybe Plasma Exchange will be up next, while waiting for SCig to get FDA approval