Reply To: Anti-MAG treatment update

July 27, 2017 at 1:18 pm

Hi..This response is for 5523Cats….not sure if you were asking me (Heidi) or Jim the previous question but I will answer for my situation. I was a very active person, diagnosed with anti-MAG two years ago at the age of 58. Tingling, numbness and decreased balance and strength have been my symptoms. I had prednisone, IVIG and one course of Rituximab with no improvement. I have been approved for a second round of Rituximab next month. I don’t know if it’s helping and it may be slowing progression but since I don’t have a sense of what it would be like without, I’m not sure. I still try to stay as active as I can but have had to cut work hours and limit what I can do in the yard. Use a cane and have great difficulty with stairs. You sound like you are still very functional which is terrific. I tolerated the first round of Rituximab very well-no side effects so that is good I just don’t think it helped me. I believe it does help some folks so best of luck moving forward. Heidi