Reply To: New working diagnosis of CIDP, starting pred

July 4, 2017 at 7:23 pm

GH – I don’t think his position is that steroids are ineffective. My impression is that he thinks the steroids have a lot of side effects and if IVIG works he’d prefer not to use steroids. He also wouldn’t include them with my infusions when I was having headaches. I had heard that helped and asked him and he said no. In the end, he was right I think because my headaches have diminished significantly since I started in December. But I’m new to this world and may have the wrong impression.

So I don’t think CIDP diagnosis meant no steroids, I think it opened up IVIG as a possibility, which he prefers.