Reply To: Recommending IVIG…What to do?

July 4, 2017 at 8:52 am

Thanks for all of the responses telling me to get treatment.

I had to stop due to my blood pressure dropping to dangerous levels during the treatment. Right now, I am seeking out the opinion of a “top” Penn Doctor in Philadelphia who originally saw me and kind of brushed me off. After this blood pressure thing happened, the second doctor outside of Philadelphia kind of was very non-chalant. He did this in the beginning when I originally came to him, then all of a sudden got very concerned, and now is not concerned again. There is no change in symptoms.

In fact, I had to start taking Neurontin to help things out!

So, I think I am going to go back to the “top doc” in Philly and see what she says armed with this new EMG that says I have severe nerve damage, demylination, and CIDP. There is no denying that!

If she says to get treatment, I will try again. I feel safer knowing that a head doctor at Penn Hospital is telling me to get this treatment, y’know?