Reply To: Isolation

July 4, 2017 at 6:55 am

Hey everyone,

I could very much relate to these posts. They are all very sad stories. I am lonely and isolated and I feel like no one really understands. I spend a lot of time on the internet searching for support or things to do, sometimes not even related to CIDP.

I joined with a very hopeful heart. 90% of those Meetups in my area are for activities that are very strenuous for me, like hiking, jogging, etc. I have physical limitations that I need to accept and getting out and hiking four miles in a woodsy park is not going to happen.

I am also very unsteady on uneven surfaces so those things wouldn’t work!

I wish I could make friends. I don’t work, I’m on disability, so I have a lot of free time. I am taking an online class starting in a few days. However, I need more friends I can just call and chat with and grab a coffee with. When I call the people I know now, they make sure I am not in a crisis and hang up.

I have two good friends I live with, but they are married to each other, work, have lives, etc. My best friend(one of the women I live with) cannot be my only person forever.

Maybe we can start individual posts for our areas? Are we allowed to do that?