Reply To: questionable diagnosis
I sure hope it works for you. Since March only; that’s really quick. Of course everyone is different, but CIDP is normally slow moving to get to the point you are. I guess I am lucky. I’ve had this since 2003 or so and it started getting bad only in the last few years. I do get the creepy-crawlies where it feels like bugs are crawling on me sometimes. I didn’t know if that was a symptom of CIDP, or maybe a symptom of Neurotin. Weird stuff. I do get get mixed sensations in my feet. Sometimes it feels like I’m walking in a wet sock. Also, I am both numb and hypersensitive to pain. Go figure! I’m interested in what your test results are. What is your area of the country? In my mind, I still think this is being caused by something in the food we eat everyday. It took over 20 years to find out saccharin caused hardening of the arteries and not for everyone. Too bad our country has been behind in medical research for the past 15 years. I am from Chicago originally.