Reply To: Non-linear recovery (tell me I don't have CIDP)

Thank you all for your responses. I’m feeling worse every day. I’m going to call the neurology clinic on Monday. I have a neurologist (the one who treated me for my 6-day hospital stay) but my follow-up appointment is not until July. They were booked that far out when I scheduled in April. I’m not sure how I’m going to get in sooner, or if they will refer me elsewhere.

My hospital EMG showed “acute polyradiculoneuropathy with subtle demyelination” so my GBS dx was pretty certain. I’m nervous about what this means going forward, if I will be able to return to work, etc. I think you all are right though, in that I need to go in ASAP.