Reply To: Isolation

B
June 2, 2017 at 10:53 pm

LMayberry,

Your story breaks my heart. It sounds like you need an advocate. Could a family member step in? I know you don’t have anyone who lives there locally, but perhaps something could be done by phone? Or maybe a social worker or the local liaison from the CIDP Foundation? If you’re paying that much for a nursing home, it seems you should be getting regular therapy and also participation in group activities in the common area where you could meet others. Best of luck and I’m thinking about you.