Reply To: Unable to tolerate IVIG?

Hi Liam,

The good news is that you have many choices over IVIg. IVIg never worked for me, even though I tolerated it well. Maybe your body is telling you it won’t work for you.

An alternate to IVIg is SCIg. It is absorbed over a longer period of time and can be an effective treatment for those who cannot tolerate normal IVIg infusions. Here is a recent discussion about SCIg that may provide you with helpful information about this treatment option:
https://forum.gbs-cidp.org/topic/subcutaneous-infusions

Another, more popular treatment for AMAN, because IVIg and SCIg are not considered as effective for AMAN, is Plasma Exchange (PE). More info about PE can be found in these recent discussion threads:
https://forum.gbs-cidp.org/topic/denieddelayed-ivig
https://forum.gbs-cidp.org/topic/plasma-exchange-times

You may also find some useful info about AMAN here:
https://forum.gbs-cidp.org/topic/axonal-guillan-barre-aman

If you run into problems getting your insurance to cover alternative treatments, we have other forum threads that discuss methods of dealing with insurance company denials. Just let us know the details if it happens and we will try to help.