Reply To: Urine Retention – Acute pandysautonomia

Acute pandysautonomia is considered an uncommon variant of GBS. More info about it here:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486878/pdf/jnnpsyc00005-0099.pdf
https://www.ncbi.nlm.nih.gov/pubmed/23568990

I only have experience with GBS as an adult. Since I initially lost bladder control they used a catheter. I had it for several months. My doctor was concerned about infections and wanted me to be able to do without it. That took 4-6 weeks before I was able to stay without it.

Perhaps taking vitamin B6 + Magnesium would help with fluid retention. A drug such as Lasix may be needed to help get things flowing again.

A young boy’s body is still growing and maturing. It may not be retention as much as it could be related to age. He may need extra time to adjust to the change, but I don’t know, it’s just my opinion.

Maybe another forum member has more first hand knowledge.