Reply To: Axonal Guillan Barre (AMAN)

May 17, 2017 at 8:53 pm

Hi everyone,

I just had an EMG today and learned I have axonal neuropathy. I wonder if it is Axonal Guillain Barre, as I was previously diagnosed CIDP. I see my Neurologist on the 23rd of June; another doctor did the EMG. The doc doing the EMG said all of the nerves that she tested in my lower extremities and low back have slow or absent response. We are doing the upper body at a later date.

I have some of the exact same experiences as many of you, having random sensations, pain, etc. But one that struck me is that my last two fingers on both hands intermittently go numb. Especially when holding things.

I wonder what my Neurologist will have to say!

I am receiving IVIG at home starting this Friday. I will be getting a 5 day loading dose.

Good luck everyone!