Reply To: Starting IVIG Loading Dose

May 16, 2017 at 9:33 am

Liam, I was having horrible symptoms before I started IVIG — the worst being jolts of nerve pain down my legs that were bad enough to make me grab onto things to keep from falling. The first round of five infusions took away the nwrve pain entirely. Such a relief. I’m three infusions into my third round of five. I have severe nerve damage in both legs, and my neurologist didn’t even hold out hope of getting my legs back to normal. His goal (and mine) was to prevent loss of function from spreading to my arms and hands. Yet I am regaining strength in my legs! I walk with a cane all the time. My balance is still bad, but I’m improving so much that I have a lot of hope for the future. Because I am also severely immune deficient, I will take IVIG every month for the rest of my life. It’s a nuisance, but it’s worth it! After all, the many people I know with diabetes take insulin every single day and don’t grouse about it. They’re just glad to be alive, and so am I.