Reply To: Informative CIDP Video

May 6, 2017 at 11:58 am

I have had only one five day course of IVig from March 29 to April 2. Then my Neuro put me on five days of Prednisone April 19-23, which seemed to help more in giving back strength and some sensation, but it is wearing off already. Ny neuro said he would re-evaluate me mid June to determine further treatment, but I am feeling serverely under treated at this time.

I have Type II diabetes, so the steroids are not a good choice for me. I have had six months of steroid implants in my right eye for retinal bleeding, which added about 20 pounds, and the five days of Prednisone added another five pounds.

I am still theee month away from being evaluated by the UC Irvine Neuromuscular Center to try to confirm the CIDP diagnosis to make Blue Shield happy about paying for all of this. They denied paying for some of the blood tests ordered which cost me about $600. The IVig cost me $1400 in copays, so I really can’t afford all of this.