Reply To: Husband newly dx GBS but relapse at 4weeks, help or advice

May 4, 2017 at 2:28 pm

It seems to me that he was moved out of the acute hospital too soon, but that’s what hospitals do nowadays. I, too, was discharged early and came back — twice. In my case I was reclassified from GBS to CIDP.

These terms are just labels for symptoms, not the thing itself. Strictly speaking, to be classified as GBS certain conditions must be met. So maybe it isn’t GBS, but that doesn’t mean that they know what it is except that it’s a peripheral neuropathy.

It is true that there is a lot of variation. I was told that I was atypical under either diagnosis, but I’m not GBS so I’m classified CIDP.

Is he getting more IvIg? If the second round helped, why wouldn’t they try a maintenance regimen? Anyway, keep trying to improve the diagnosis and the treatment. These conditions require great patience and perserverance to get through.