Reply To: Anyone: UC Irvine Neuromuscular Center?

I requested and got a spinal tap when I was in the hospital four weeks ago. The protein level was in the high normal range, so not conclusive. No big change after the IVig, but a noticeable difference after the Prednisone. Being diabetic, Prednisone is not a really good option for long-term.

My neuro just seems to be banking off in doing anything until I get seen by UCI, but my financial resources are running low. All of he delays in treatment are so frustrating. It took over a year to get a diagnosis, then another four months to get the IVig.

Now I have the four month wait for anything else to happen.