Reply To: For those who get regular IVIG infusions, how often do you get them?

April 27, 2017 at 1:16 pm

Buckeye,

In the meantime, has the doctor given you anything else? Some people respond to prednisone and Jim linked to these possible treatments: “immunosuppressive drugs such as cyclophosphamide, cyclosporin, tacrolimus, mycophenolate mofetil, azathioprine and type 1 interferon (INF-1?) and IFN-beta can be used to limit corticosteroid and immunoglobulin use”

This might help you in the meantime.