Reply To: For those who get regular IVIG infusions, how often do you get them?
Buckeye,
In the meantime, has the doctor given you anything else? Some people respond to prednisone and Jim linked to these possible treatments: “immunosuppressive drugs such as cyclophosphamide, cyclosporin, tacrolimus, mycophenolate mofetil, azathioprine and type 1 interferon (INF-1?) and IFN-beta can be used to limit corticosteroid and immunoglobulin use”
This might help you in the meantime.