Reply To: Axonal Guillan Barre (AMAN)
April 15, 2017 at 5:11 pm
Hi Helga, I’m sorry to hear you’re not making as much progress as hoped. Both IVIg and PE can help treat AMAN.
If conditions are worsening for you, that could be evidence that there are numerous bad antibodies loose in your system and doing more damage. If so, 2-3 days of PE to start, followed by IVIg may provide the most help because IVIg won’t remove what’s already there. PE will filter out the bad antibodies, but won’t stop your system from producing new ones like IVIg will do.
Here is a an article about treating AMAN:
I hope insurance companies in Iceland have the patient as their top priority and will not impose stringent requirements on your treatment choices.