Reply To: Week of IVIg treatments and a second opinion
One other thing. I thought I reacted proactively to most most recent decline. Yet, I would say I fell back to 30% of my normal self.
It’s going to take weeks to get back to my peak of 75%.
From now on, I’m going to react sooner. It’s just too much stress to have to deal with all the weakness and motor control issues over and over.
So my new rule is the a week of 10% decline means take action.
And at a certain point, the CIDP symptoms seem to acclerlate in severity at some point. I waited too long and as a result went quickly downhill.
I hope that observation pushes people to reach out to their doctor sooner than later.