Reply To: Headaches

Sandra,

My understanding is that a standard protocol for IVIG is 2g/kg over 3-4 days for the loading dose and 1g/kg over 1-2 days for the maintenance doses. Given my weight, 65-70 g is appropriate. I’m only one day out, but I’m currently headache-free after yesterday’s maintenance dose.

My neurologist said that I need to receive IVIG for 6 months before really evaluating if it works. But I keep a daily spreadsheet of symptoms, and while self-reported and subjective, I do think that it is helping. My bad days aren’t as bad and my good days are better. And objectively, my chronically elevated WBC came down to normal and my elevated CRP cut in half (after just the loading dose).