Reply To: For those who get regular IVIG infusions, how often do you get them?

April 5, 2017 at 3:38 pm

BTW, my neurologist and others in the same practice, all of them regarded as top doctors, never prescribe steroid therapy for neuropathy because they feel it’s too dangerous and has too many serious side effects. You know how rare CIDP is, but my neurologist is treating 5 cases, including mine, because other neuros refer them to him. He has one patient who has been off IVIG for almost a year now with no backsliding. He regained most of his function. But he’s much younger than I am, is otherwise healthy, and has a relatively mild case, while I’m older with other problems and had already lost 75-80% of the nerve function in my legs by the time I was diagnosed. Age matters a lot with this disease.