Reply To: For those who get regular IVIG infusions, how often do you get them?
I get IVIG every 5 weeks now. I was at every 4 weeks for a long time and recently decided to try and push it out to 5 weeks. so far, so good. I have been at the 5 week maintenance dose for about 4 infusions and no problems in between treatment. My hopes are to try to push to 6 weeks in about 6 months to see what happens. I too tried prednisone for my first line of treatment. I was miserable and hated the side effects. I insisted I be taken off the crap and that was when I tried IVIG (6 years ago) and have been on IVIG ever since. I don’t have any symptoms of my CIDP as long as I stay on the IVIG. I go experience very mild symptoms from time-to-time, mostly related to stress. When i get stressed my buzzing feeling in my neck returns, my feet tingle and wobbly knees. But once my stress evens out the symptoms also go away.