Reply To: For those who get regular IVIG infusions, how often do you get them?
Oh yes… one more thing. I too had real cognitive issues when on the steroids. I worked as a computer system programmer for 30 years and to toot my own horn… I was really good at it. But I got to the point where I couldn’t think clearly and was making stupid mistakes that I never made before. It was worse because I managed a team of system programmers and it was very noticeable to all. I use to be able to multi-task with the best of them, but after fighting the disease for a year (and dealing with treatment side-effects)… I had to eventually retire much earlier than I wanted. I wasn’t doing my team nor my company any good… and I guess most importantly, I wasn’t doing myself any good either. My body needed to rest more. I became exhausted a lot and when I pushed myself I would be down for 2-3 days. Now that I no longer work, I am able to get the rest that I really need and I feel much better because of it. I concentrate on myself, rather than a large corporation! 🙂