Reply To: For those who get regular IVIG infusions, how often do you get them?

March 26, 2017 at 10:44 am


Your experience with highs and lows seems to mirror mine.

The reason I asked is that I think I reached the tolerance level of my prednisone regimine.

I’ve been on it since December. Besides the weight gain, I think it has started to weaken muscles, definitely is impairing my thinking to an unacceptable point, and on Friday, my feet and ankles swelled up like balloons. I can’t even put gym shoes on!

I see my neurologist Monday and I’m going to insist on continuing my treatment with a maintenance dose of IVIg. I’m done with steroids.