Reply To: First week back to work…

February 21, 2017 at 12:05 am

I personally have had CIDP for 4 years now, and while I don’t have nerve pain or sensory overload, I do have numbness and tingling in my legs and fingers. However, don’t take the sensory overload as a bad sign. For me, the numbness never went away; so the fact that yours is going away is a good sign. It means the nerves are indeed healing. Fatigue in your legs is going to be normal, especially if you’re only a few weeks out. Mine lasted for 4 months once I was out of the hospital the first time, to the point where I had to use crutches.

If the CIDP is getting worse, you’ll know. Keep track of how you feel each day, and make a note of it. That way, you can see if you’re just tired from work, or getting worse overall. If it’s the later, set up an appointment with your doctor to take a look at you to determine if you need treatment. It’s also important to research as much as you can about this condition, so you know what to look for and can stay on top of it. The sooner you get treatment if you’re relapsing, the less damage that’s done.

One last thing to keep in mind is that everyones case is unique in some way. For example, it sounds like yours affected both your hands and legs, whereas mine barely touches my hands. Some peoples affect the sensory nerves primarily, whereas others may have theirs affecting their motor nerves more, or both. So the best thing for you to do is keep an eye on yourself and establish what is a “normal feeling”. If something doesn’t feel normal, get it checked. If you ever have trouble breathing or swallowing, get it checked immediately. Also, congrats on being able to go back to work! I wish you the best of luck!